A letter to my friends about the Cystic Fibrosis Lifestyle Foundation
I remember very clearly, to the day, when the Cystic Fibrosis Lifestyle Foundation saved my life.
My family lived in Dallas at the time, and during on of my visits, I elected to stay at the apartment instead of joining my mom grocery shopping. I told my mom it was because I wanted quiet time, but the reality was, I just didn’t want to go out into public in a wheelchair. My medications were littering the kitchen table, cupboards, and counters. I was a wreck.
The energy I use to have, somehow vanished. I cried myself to sleep every night and every morning debated if I had the strength to get through. My crying didn’t even bring me the peace I craved, it only tightened my chest muscles and forced me to cough up infected mucous. I knew my life was almost over and if I questioned it, I would just look at the diagnosis.
Cystic Fibrosis had won.
Doctors were saying things such as “lung transplant” and “you only have 37% lung function.”
Disability paperwork was given to me as if this was my only option.
The career I fought for vanished with another termination from an employer. The life I dreamed about became a living nightmare.
I was literally suffocating on my own phlegm, unable to go pick out groceries for the week.
Crying that cry that to this day, I pray none of my friends or loved ones will ever experience. The kind of cry that makes you feel like there is nothing left to life, nothing left to live for, nothing left to experience except your own inevitable death.
And my phone dings that familiar Facebook notification.
A charity, Cystic Fibrosis Lifestyle Foundation wanted to gift me a $500 recreation grant so I can study Zumba and enroll in a gym.
It seemed as if everything was lost. Yet, that simple $500 was the catalyst I needed to pick myself up off the floor and fight one more time for the life I had left in me.
I was knocked down but I discovered I wasn’t knocked out.
It was roughly three months later, I auditioned and became a nationally recognized Zumba instructor and started teaching dance classes all over San Diego.
Klyn does her pulmonary function tests every 4 monthsI would not be alive if not for that Facebook ping.
And now, I’ve been called to give back and help other patients with Cystic Fibrosis in San Diego experience what I experienced.
There’s 3 Ways to Help the Cystic Fibrosis Lifestyle Foundation
I am incredibly grateful for my donors to this day and for those who gifted grants that kept me alive.
Of course, progress would never be possible without all of your support.
Let’s KNOCK OUT #CysticFibrosis… Together.